Patient and Public Involvement and Co-Production
Patient and public involvement helped to shape our study design by highlighting the importance of engagement with family and paid carers, who can be often overlooked by statutory services.
About patient and public involvement
Patient and public involvement (PPI) representatives on the study’s steering advisory group are providing ongoing input over the course of the study. On-going conversations with older people living with frailty and their families will shape all aspects of this research.
To ensure that we have meaningful and ongoing Patient and Public Involvement (PPI) over the course of the study, we have adopted a flexible approach to making arrangements that are best suited to older people’s needs and that provide appropriate resourcing will maximise involvement. The PALLUP Study has been adopted by Kent, Surrey and Sussex (KSS) Applied Research Collaboration (ARC) co-production theme to help us develop our knowledge and application of co-production in our research programme.
As part of this ongoing work we have created a repository to upload and download shared resources for people who are undertaking research and evidence-building using creative approaches with older people living with complex care needs. The repository can be accessed
The PALLUP Study: Improving home-based palliative care for older people
Principal investigator: Professor Caroline Nicholson
Start date: September 2019
End date: September 2024