Richard is a Research Fellow working on The PALLUP Study - Improving home based palliative care for frail elders. He completed a BSc in Criminology and Sociology at Royal Holloway University and then an MSc in Social Research Methods at the University of Surrey before completing his PhD in Sociology in partnership with both universities on an ESRC studentship. Before joining the PALLUP study, he worked at the Office for National Statistics as a Senior Research Officer.
Richard's PhD explored men's experiences following treatment for prostate cancer in a qualitative interviewing study. His primary research interests sit within the field of the sociology of health and illness, with particular interests in themes including ageing, gender, chronic illness, and embodiment.
Richard is working with Professor Caroline Nicholson on The PALLUP Study: Equipping community services to meet the palliative care needs of older people with frailty approaching the end of life; a mixed methods study.
This five year study aims to identify and understand Palliative Care needs of severely frail elders, develop the evidence-base for provision of community palliative care and co-design resources better to access and deliver palliative care.
Overall Research Questions
- What are the specific Palliative Care needs of frail elders living at home as they approach end-of-life?
- What are the key features and actions of community service delivery that better address Palliative Care needs of frail elders and how might carers better access this care?
Phase Specific Aims and Objectives
Phase 1- Aim: To establish consensus on the core Palliative Care needs of severely frail elders.
- Undertake a two round Modified Delphi with clinicians, severely frail elders, their family carers and care providers across health, social and third sectors to identify core palliative care needs
- Contribute insight about the shared and distinctive features of core palliative care needs of frail elders
Phase 2- Aim: To map and categorize the scope of, and variation in, community palliative care provision for severely frail elders and identify common features of innovative service provision using an England wide Survey
- Document common responses of care agencies to palliative care needs
- Describe common components of innovative services introduced to meet palliative care needs of frail elders
Phase 3- Aim: Use in-depth case studies to understand the (met and unmet) Palliative Care needs and experiences of care for severely frail elders as they approach end-of-life, their families, and the response of care agencies.
- A multi-perspective investigation using longitudinal, prospective, in-depth case studies (N=3) in sites identified as delivering innovative models of care delivery.
- Explore, from their perspective, the experiences of frail elders as they approach end-of-life and that of family carers and care agencies; in relation to the met and unmet Palliative Care needs, changes in these needs, how this is identified and agency response
- Characterize and describe core service components of Palliative Care for frail elders
- Identify and Understand elements of service assessment, response and configuration that facilitates or impede meeting Palliative Care needs
Phase 4- Aim: To develop a framework of Palliative Care provision for severely frail elders approaching the end-of-life, generate guidance for service delivery that better addresses their Palliative Care needs and a tool for carers to trigger access.
- Determine the key features of palliative care for frail elders approaching end-of-life
- Develop Service Framework on key features of Palliative care and tools to facilitate adoption and co-design a tool for family carers to self-identify triggers to access Palliative Care and carry out preliminary testing of tools in practice
- Inform future research through consensus on specific Palliative Care needs of frail elders
- Describe and characterize services nationwide
- Inform service delivery by enhanced understanding of experiences of frail elders
- Create a Service Framework outlining key features of community Palliative Care for frail elders-
- Provide detailed guidance and resources on embedding the key features of Palliative Care for frail elders into services and recommendations on assessments and measurements that best supports delivery of this care-
- Tool for family carers to self-identify triggers to Palliative Care