Research readiness in UK hospices: a national survey of organisational readiness and capacity
Start date
01 May 2026End date
31 March 2027Overview
More people in the UK are living with serious illness and need palliative and end‑of‑life care. Hospices play a vital role in providing this care, often in people’s homes and local communities. At the same time, there is growing recognition that end‑of‑life care should be based on good evidence, so it is fair, high quality and meets people’s needs.
However, relatively little research takes place in hospices, and many hospices face practical challenges in getting involved in research, such as limited staff time, skills, funding or systems to support research. As healthcare policy increasingly shifts care away from hospitals and into community settings, hospices are becoming an even more important places for research.
What the study will do
This study will use a survey to understand how prepared hospices are to engage with research. Every eligible UK hospice is being invited to complete a short online survey to understand how research is currently viewed, supported and carried out. This study will provide a clear national picture of where hospices currently stand, so that support, or the case for investment, can be targeted where needed.
The survey asks about:
- Research activity
- Staff research experience, interest and involvement
- Research infrastructure, governance arrangements, and partnerships
- Research culture
- Awareness of and membership in research networks
- What is working well, what gets in the way, and what support would make the biggest difference.
What difference it will make
The survey will produce the first national baseline of hospice research readiness, activity and support needs. We will set what hospices tell us they need against what already exists, so that gaps can be addressed rather than assumed. Findings will inform a report with strategic recommendations for sector partners, an executive summary for participating hospices, and academic publication. We aim to build a foundation for practical, targeted support, so that end-of-life care continues to improve for patients and families.
Aims and objectives
This survey aims to understand how research is perceived, supported and implemented across the UK hospice sector, and to identify organisational readiness, capacity and resource needs.
Objectives:
- To examine UK hospices’ current organisational readiness and capacity for research, including research capacity indicators (e.g. staffing, qualifications and experience), infrastructure and governance arrangements.
- To assess the current level of research activity within hospices. This will include the types and amount of research being undertaken, research outputs (such as publications and presentations) and partnerships.
To identify the resources and support UK hospices need to initiate, sustain or enhance research engagement, including practical and operational requirements.
Team
Principal investigator
Dr Sarah Combes
Senior Lecturer in Health Sciences
Biography
Sarah is a clinical academic nurse specialising in palliative and end of life care for older people living with advancing frailty, dementia, and complex care needs. She is Senior Lecturer in Health Sciences at the University of Surrey and NIHR Senior Research Leader: Nursing and Midwifery, holding an honorary contract with St Christopher's Hospice.
With a background in leadership, change management, and education across sectors, Sarah brings a systems-level perspective to translational research. Her work focuses on informed decision-making, workforce development, and service improvement to support older people with complex conditions, and the unpaid carers who support them.
Sarah was awarded a prestigious HEE/NIHR Clinical Doctoral Research Fellowship, which she completed at King's College London. Her PhD used the Behaviour Change Wheel to develop CLaD (Conversations on Living and Dying), an intervention to support health and social care professionals to better instigate and support advance care planning with older people living with advancing frailty. Sarah continues this work as Co-Chief Investigator, with Professor Caroline Nicholson, on What matters most? a co-production study developing tools to support meaningful conversations with older people in the last phase of life. She is also Co-Chief Investigator on STRENGTH, exploring anticipatory grief among unpaid carers of older people with complex conditions.
Sarah's earlier studies focused on improving home-based palliative care for older people with advancing frailty, and building regional partnerships (ALLIANCE) to improve end-of-life care coordination across community settings. As an NIHR Senior Research Leader, she leads national work on research readiness in hospices, including a national survey and mapping exercise, and is working collaboratively to develop a hospice research network to strengthen palliative care research capacity beyond traditional academic settings.
Co-investigators
Dr Louise Strickland
Divisional Lead for NMAHP Research & Innovation, Surgery, Women’s & Oncology Division, Oxford NHS Trust
See profile
Claire Prendergast
Lead Research Nurse, Dorothy House Hospice; NIHR RDN SWC Residential Setting Lead
See profile
Dr Anne Finucane
Marie Curie Senior Research Fellow, Clinical Psychology, University of Edinburgh
See profile
Dr Nicola White
Senior Research Fellow, Marie Curie Palliative Care Research Department, Division of Psychiatry, UCL
See profile
Dr Richard Green
Surrey Future Fellow
Biography
Richard was awarded a prestigious Surrey Future Fellowship in April 2023 to develop an ambitious interdisciplinary programme of research focused on understanding and addressing complex challenges in health and social care using artificial intelligence, systems thinking, and simulation methods. His current work explores how agent-based modelling (ABM) and participatory approaches can be used to investigate under-examined areas of care provision and access, primary, community, palliative, unpaid, and integrated care contexts.
Richard’s research vision is shaped by a commitment to advancing qualitative and mixed-method research that accounts for the complexity of care systems and the lived experiences of older adults and their caregivers. He is particularly interested in how simulation methods can support both research and policy.
Richard completed a BSc in Criminology and Sociology at Royal Holloway University and then an MSc in Social Research Methods at the University of Surrey, before completing his PhD in Sociology in partnership with both universities on an ESRC studentship. His PhD explored men's experiences following treatment for prostate cancer in a qualitative interviewing study. Before joining the PALLUP study, Richard worked at the Office for National Statistics as a Senior Research Officer, working on facilitating research access to secure data for research that serves the public good.
Research groups and centres
Our research is supported by research groups and centres of excellence.