Long-term Conditions and Ageing Research Cluster
Our vision is to ensure provision of high quality, values-based health and social care research across the life-span.
Effective management of people with long-term conditions is a priority within health care and an ageing population. Our research activities are designed to develop and strengthen local, national and international collaborations enabling the delivery of high quality, values-based health and social care practice across the lifespan.
Our research focuses upon dementia care, frailty and multi-morbidity in older people, non-medical prescribing, self-management of long-term conditions, workforce preparation and models of care.
The mission of the Long-term Conditions and Ageing Cluster is to ensure provision of values-based care for service users by advancing knowledge in health and social care across the lifespan.
Our research falls into five main areas:
- Dementia care
- Frailty and multi-morbidity in older people
- Non-medical prescribing
- Self-management of long-term conditions
- Workforce preparation and models of care
- Palliative and end of life care.
- Realist synthesis and evaluation
- Randomised controlled trials
- Intervention studies
- Participatory research
- Grounded theory
- Systematic review
- Delphi technique
- Mixed methods
- Longitudinal and cohort studies.
Areas of interest for doctoral study
We welcome approaches from people wishing to undertake postgraduate research with us. We particularly welcome enquiries in the following areas:
- Frailty and care homes- admissions avoidance, recognising deteriorating patients, quality of life, transitions into end of life, and end of life care
- Implementation and evaluation of non-medical prescribing, medicines optimisation
- Workforce development: extended roles, advanced clinical practice
- Self-management of long-term conditions
- Learning disabilities
- Quality improvement.
Some of our current studies include:
- ALLIANCE partnership.- Sarah Combes
- Management of Covid-19 related hyperglycaemia (CovHG) in primary care: An exploratory study to assess service user and clinicians’ experiences, treatment outcomes and their recommendations for optimal care - Nyangi Gityamwi
- Function and Emotion in Everyday Life with Type 1 Diabetes: FEEL-T1D - Haomiao Jin
- Testing early markers of cognitive decline and dementia derived from survey response behaviors - Haomiao Jin
- Electronic medical records and virtual consultations - Caroline Nicholson
- Virtual consultations for people with learning disabilities, their families and healthcare providers. A co-design study. ARC-KSS Funded. Website development in progress - Dr Freda Elizabeth Mold
- The Together Project - Supporting the delivery of good practice in maternity services for parents with learning disabilities - Anna Cox
- Recognising when a parent-to-be may have learning disabilities: An educational film based on learning from the Together Project to facilitate engagement in research - Dr Anna Cox
- Developing an accessible version of a Tool to Measure Parenting Self-Efficacy (TOPSE) for parents-to-be with learning disabilities - Dr Anna Cox
- Cross-cultural perspectives on roles, responsibilities and future care for older adults.
- Evaluation of the implementation of “Freedom to Speak up Local Guardians” in NHS acute hospital trusts and mental health trusts in England
- Evaluation of supplementary prescribing by dietitians and independent prescribing by therapeutic radiographers
- Developing an innovative healthcare system for palliative care in Ethiopia: co-design and user testing of a mobile phone based remote monitoring system (E-PC)
- Improving Early Detection of Infection in Nursing Home Residents - Implementing the Early Detection of Infection Scale (EDIS) in UK Nursing
- TiME Matters – study exploring design and acceptability of using a digital story-based communication system for care home settings
- DAFNEplus: Developing and trialling the DAFNEplus (Dose Adjustment for Normal Eating) intervention.
- BEAT Diabetes – An online, digital platforms, accessed through primary care, to encourage and support people with type 2 diabetes to make positive lifestyle changes
- Melting the Snowy White Peaks of the NHS: Overcoming barriers to career progression for BME nurses
- Generation Z’s Views of Care and Care Careers: An International Comparison
- Does the current pre-registration nursing curricula meet the needs of newly qualified nurses who are recruited directly to community nursing?
- Time for Dementia - involving health care professionals visiting people with dementia and their family
- MDTea podcasts - Developing open access series of podcasts for all healthcare professionals working with older adults
- CHHiP linkage - Extracting primary care records for patients enrolled to a RCT called CHHiP to investigate the effect of comorbidity on recovery from cancer and its treatment
- Story-telling and occupational wellbeing in health-care: a process evaluation of Schwartz Centre Rounds® using an interactional framework
- What do patients want from online access to their primary care record? A qualitative investigation into patients’ reported needs and expectations regarding online access
- Developing Wellbeing Online - online platform for digital mental health and wellbeing interventions for University of Surrey students and staff
- The PALLUP Study: Equipping community services to meet the palliative care needs of older people with frailty approaching the end of life; a mixed methods study- Funded by NIHR/HEE ICA SCL
- CASACDE Project: Empowering staff caring for older people with frailty - Funded by Burdett Trust for Nurses- Frailty Matters Programme
- INTERPRET-X- Understanding patient uptake and experience of interpreter services in primary care: a pilot study
- Delegation of insulin administration to non-registered healthcare workers in community nursing teams: an evaluation of care and practice for older people with diabetes (CINDI)
- The DCC service evaluation
- Oluwatoyin Adeniji: Rapid implementation of innovations in healthcare service delivery for musculoskeletal patients: A sequential exploratory/explanatory mixed methods. (Supervisors: Dr Theopisti Chrysanthaki, Dr Karen Stenner, Dr Nicola Carey)
- Faith Howard: Patient reported outcome measures and patient reported experience measures to assist services to meet the priorities of older people with advancing frailty
- Ali Haddad: Perceptions of the Good Nurse in Intensive Care in Kuwait: A Grounded Theory Study (Supervisors: Anne Arber, Anna Cox and Ann Gallagher)
- Karen Cook: Developing undergraduate curricula to facilitate nurses’ ability to support self-management amongst people with long term conditions (Supervisors: Dr Debbie Cooke, Dr Nicola Carey)
- Judith Edwards – Exploring the Implementation of Paramedic Independent Prescribing in Primary Care: a mixed methods multiple case study (Supervisors: Dr Nicola Carey, Dr Debbie Cooke, Prof Melaine Coward. Co-supervisor: Mr Andy Collen)
- Olivia Luijnenburg: ETHoS Project: The Ethical Implications of 'Spirituality' in Residential Care for Older People. (Supervisors: Professor Ann Gallagher, Dr Freda Mold)
Aunger, J., and Wagnild, J. (2022). Objective and subjective measurement of sedentary behavior in human adults: a toolkit. American journal of human biology, 34(1), e23546.
Beetham, B., Fasola, C., and Howard, F. (2022). Preferred Place of Death Discussions: Are They Informing and Empowering Patients and their Family Caregivers?. OMEGA-Journal of Death and Dying, 00302228221115587.
Downs, S., Carey, N., and Mold, F. (2022). Barriers and facilitators to out-of-hospital pain management for children. Journal of Paramedic Practice, 14(4), 1-11.
Oozageer Gunowa, N. (2022). Skin tone bias and wound care: highlighting the current evidence and addressing the gaps in knowledge of dark skin tones. Wounds UK, 18(1).
Jensen, B. W., Watson, C., Geifman, N., Baker, J. L., Badrick, E., and Renehan, A. G. (2022). Weight Changes in Type 2 Diabetes and Cancer Risk: A Latent Class Trajectory Model Study. Obesity facts, 15(2), 150-159.
Johnson, L. C., Haregu, T., Sathish, T., De Man, J., Desloge, A., Absetz, P., and Oldenburg, B. (2022). Effects of a lifestyle intervention on depression and anxiety among adults at risk for diabetes in India: A secondary analysis of the Kerala Diabetes Prevention Program. Preventive Medicine, 162, 107172.
Nicholson, C. J., Combes, S., Mold, F., King, H., and Green, R. (2022). Addressing inequity in palliative care provision for older people living with multimorbidity. Perspectives of community-dwelling older people on their palliative care needs: A scoping review. Palliative medicine, 2692163221118230.
Salie, M.T., Yang, J., Ramírez Medina, C.R., Zühlke, L.J., Chishala, C., Ntsekhe, M., Gitura, B., Ogendo, S., Okello, E., Lwabi, P. and Musuku, J., 2022. Data-independent acquisition mass spectrometry in severe rheumatic heart disease (RHD) identifies a proteomic signature showing ongoing inflammation and effectively classifying RHD cases. Clinical proteomics, 19(1), pp.1-12.
Schneider, S., Junghaenel, D. U., Meijer, E., Zelinski, E. M., Jin, H., Lee, P. J., and Stone, A. A. (2022). Quality of survey responses at older ages predicts cognitive decline and mortality risk. Innovation in Aging, 6(3), igac027.
Smith, G., Harcourt, S., Hoang, U., Lemanska, A., Elliott, A.J., Morbey, R.A., Hughes, H., Lake, I., Edeghere, O., Oliver, I. and Sherlock, J., 2022. Observational study of mental health presentations across healthcare setting during the first 9 months of the COVID-19 pandemic in England. Journal of Medical Internet Research.
Shore, C. B., Maben, J., Mold, F., Winkley, K., Cook, A., and Stenner, K. (2022). Delegation of medication administration from registered nurses to non-registered support workers in community care settings: a systematic review with critical interpretive synthesis. International Journal of Nursing Studies, 126, 104121.
Taylor, C., Mattick, K., Carrieri, D., Cox, A., and Maben, J. (2022). ‘The WOW factors’: comparing workforce organization and well-being for doctors, nurses, midwives and paramedics in England. British medical bulletin, 141(1), 60-79.
Whitaker, K. L., Krystallidou, D., Williams, E. D., Black, G., Vindrola-Padros, C., Braun, S., and Gill, P. (2022). Addressing language as a barrier to healthcare access and quality. British Journal of General Practice, 72(714), 4-5.
Williams, E., Onih, J., Cox, A., Dockrill, K. and Maben, J. (2022) Nursing education needs to acknowledge the impact of race and racism. Nursing Times. https://www.nursingtimes.net/opinion/nursing-education-needs-to-acknowl…
Practical General Practice Nursing (2021) Dr Marion Welsh and Susan Brooks Paperback ISBN 9780702080289. Published by Elsevier. ebook available
Combes, S., Forbes, G., Gillett, K., Norton, C., and Nicholson, C. J. (2021). Development of a theory-based intervention to increase cognitively able frail elders’ engagement with advance care planning using the behaviour change wheel. BMC health services research, 21(1), 1-16. doi.10.1186 s12913-021-06548-4
Combes, S., Gillett, K., Norton, C., and Nicholson, C. J. (2021). The importance of living well now and relationships: a qualitative study of the barriers and enablers to engaging frail elders with advance care planning. Palliative medicine, 35(6), 1137-1147.
Carey, N., Stenner, K., Coleman, M., Edwards, J.A., Van Even, S. (2021) Optometrist therapeutic prescribing: A rapid review of the literature. Guildford: University of Surrey. Available at: https://optical.org/en/news/news-and-press-releases/goc-shares-findings…
Cox A, Parsons T, Watkin, S, Gallagher A. (2021) Supporting the delivery of good maternity care for parents with learning disabilities. Midwifery. https://doi.org/10.1016/j.midw.2021.103073
De Man, J., Absetz, P., Sathish, T., Desloge, A., Haregu, T., Oldenburg, B., Johnson, L.C., Thankappan, K.R. and Williams, E.D., (2021) Are the PHQ-9 and GAD-7 suitable for use in India? A psychometric analysis. Frontiers in psychology, 12, p.676398.
Gallagher, A., Peacock, M., Williams, E., Zasada, M. and Cox, A., (2021) Findings from a mixed‐methods pragmatic cluster trial evaluating the impact of ethics education interventions on residential care‐givers. Nursing inquiry, 28(2), p.e12383.
Oozageer Gunowa, N., Hutchinson, M., Brooke, J., Aveyard, H., and Jackson, D. (2021). Pressure injuries and skin tone diversity in undergraduate nurse education: Qualitative perspectives from a mixed methods study. Journal of advanced nursing, 77(11), 4511-4524.
Oozageer Gunowa, N., Hutchinson, M., Brooke, J., Aveyard, H., and Jackson, D. (2022). Evidencing diversity: development of a structured tool for investigating teaching of pressure injury on people with darker skin tones. Nurse researcher, 30(2).
Lemanska, A., Hoang, U., Jeffreys, N., Bankhead, C., Bhui, K., Ferreira, F., Harcourt, S., James, A., Liyanage, H., Nicholson, B.D. and Sherlock, J., (2021) Study into COVID-19 crisis using primary care mental health consultations and prescriptions data. Studies in health technology and informatics, 281.
McMillan, B., Davidge, G., Brown, L., Lyons, M., Atherton, H., Goulding, R., Mold, F., Morris, R.L. and Sanders, C., (2021) A qualitative exploration of patients’ experiences, needs and expectations regarding online access to their primary care record. BMJ open, 11(3), p.e044221.
Mold, F., Cooke, D., Ip, A., Roy, P., Denton, S. and Armes, J., (2021) COVID-19 and beyond: virtual consultations in primary care—reflecting on the evidence base for implementation and ensuring reach: commentary article. BMJ Health & Care Informatics, 28(1).
Shoop-Worrall, S.J., Cresswell, K., Bolger, I., Dillon, B., Hyrich, K.L. and Geifman, N., (2021) Nothing about us without us: involving patient collaborators for machine learning applications in rheumatology. Annals of the Rheumatic Diseases, 80(12), pp.1505-1510.
Zasada, M., Yates, M., Ayers, N., Ide, Z., Norton, S., Galloway, J. and Taylor, C., (2021) Exploring the macro-level, meso-level and micro-level barriers and facilitators to the provision of good quality early inflammatory arthritis (EIA) care in England and Wales. RMD open, 7(3), p.e001616.
Aunger, J., Greaves, C., Davis, E., Asamane, E., Whittaker, A. and Greig, C., (2020) "A novel behavioural INTErvention to REduce Sitting Time in older adults undergoing orthopaedic surgery (INTEREST): results of a randomised-controlled feasibility study." Aging clinical and experimental research 32, no. 12: 2565-2585.
Baptista, S., Wadley, G., Bird, D., Oldenburg, B., Speight, J. and My Diabetes Coach Research Group, (2020) Acceptability of an embodied conversational agent for type 2 diabetes self-management education and support via a smartphone app: mixed methods study. JMIR mHealth and uHealth, 8(7), p.e17038.
Carey, N., Edwards, J., Otter, S., Gage, H., Williams, P., Courtenay, M., Moore, A. and Stenner, K., (2020) A comparative case study of prescribing and non-prescribing physiotherapists and podiatrists. BMC Health Services Research, 20(1), pp.1-20.
Carey, N., Alkhamees, N., Cox, A., Sund-Levander, M., Tingström, P. and Mold, F., (2020). Exploring views and experiences of how infections are detected and managed in practice by nurses, care workers and manager’s in nursing homes in England and Sweden: a survey protocol. BMJ open, 10(10), p.e038390.
Davidge, G., Sanders, C., Hays, R., Morris, R., Atherton, H., Mold, F. and McMillan, B., (2020) What do patients want? A qualitative exploration of patients’ needs and expectations regarding online access to their primary care record. British Journal of General Practice, 70(suppl 1).
Edwards, J., Coward, M. and Carey, N., 2020. Paramedic independent prescribing in primary care: seven steps to success. Journal of Prescribing Practice, 2(6), pp.292-299.
Gallagher, A., Peacock, M. and Cox, A., (2020) Exploring the experiences of domiciliary caregivers simulating the role of care recipients. Nursing standard, 35(7), pp.45-50.
Oozageer Gunowa, N., Brooke, J., Hutchinson, M. and Jackson, D., (2020) Embedding skin tone diversity into undergraduate nurse education: Through the lens of pressure injury. Journal of clinical nursing, 29(21-22), pp.4358-4367.
Querstret, D., O'Brien, K., Skene, D.J. and Maben, J., 2020. Improving fatigue risk management in healthcare: a scoping review of sleep-related/fatigue-management interventions for nurses and midwives (reprint). International journal of nursing studies, 112, p.103745.
Ream, E., Hughes, A.E., Cox, A., Skarparis, K., Richardson, A., Pedersen, V.H., Wiseman, T., Forbes, A. and Bryant, A., (2020) Telephone interventions for symptom management in adults with cancer. Cochrane Database of Systematic Reviews, (6).
Banks, C.A., D. Wainwright, R. Gooberman-Hill. (2020). An ethnography exploring the limits of dedifferentiation in the lives of adults with learning disabilities. Special Issue in Journal of Intellectual and Developmental Disability https://doi.org/10.3109/13668250.2020.1799161 (forthcoming December 2020).
Carey, N., Alkhamees, N., Cox, A., Sund-Levander, M., Tingström, P. & Mold, F. (in press) Exploring views and experiences of how infections are detected and managed in practice by nurses, care workers, and manager’s in nursing homes in England and Sweden: a survey protocol. BMJ Open.
Davidge G, Sanders C, Hays R, Morris R, Atherton H, Mold F, McMillan B. What do patients want? A qualitative exploration of patients’ needs and expectations regarding online access to their primary care record. British Journal of General Practice 2020; 70 (suppl 1): bjgp20X711245. DOI: 10.3399/bjgp20X711245
Gong, E. et al. (2020) My Diabetes Coach, a mobile application-based interactive conversational agent to support type 2 diabetes self-management: A randomized effectiveness-implementation trial. Journal of Medical Internet Research (in press)
Lemanska, A., Byford, R. C., Cruickshank, C., Dearnaley, D. P., Ferreira, F., Griffin, C., ... & Faithfull, S. (2020). Linkage of the CHHiP randomised controlled trial with primary care data: a study investigating ways of supplementing cancer trials and improving evidence-based practice. BMC Medical Research Methodology, 20(1), 1-12.
Banks, C.A. (2019). Professional distance versus human touch. Community Living. Available at: https://www.cl-initiatives.co.uk/professional-distance-versus-human-touch/.
Combes, S., Nicholson, C. J., Gillett, K., & Norton, C. (2019). Implementing advance care planning with community-dwelling frail elders requires a system-wide approach: An integrative review applying a behaviour change model. Palliative Medicine, 33(7), 743–756.
Gallagher, A. & Cox, A. (2019) The ethics of ‘frailty’. Nursing Ethics 26 (2):325-326.
Kidd, T., Mold, F., Jones, C. et al. What are the most effective interventions to improve physical performance in pre-frail and frail adults? A systematic review of randomised control trials. BMC Geriatr 19, 184 (2019). https://doi.org/10.1186/s12877-019-1196-x.
Lemanska, A., Poole, K., Griffin, B. A., Manders, R., Saxton, J. M., Turner, L., ... & Faithfull, S. (2019). Community pharmacy lifestyle intervention to increase physical activity and improve cardiovascular health of men with prostate cancer: a phase II feasibility study. BMJ open, 9(6), e025114.
Mold F, Hendy J, Lai YL, de Lusignan S. Electronic Consultation in Primary Care Between Providers and Patients: Systematic Review. JMIR Med Inform. 2019 Dec 3;7(4):e13042. doi: 10.2196/13042.
Shore CB, Hubbard G, Gorely T, Polson R, Hunter A, Galloway SD. (2019). Insufficient reporting of factors associated with exercise referral scheme uptake, attendance, and adherence: a systematic review of reviews. Journal of Physical Activity and Health. 16:667–76. 10.1123/jpah.2018-0341.
Stanulewicz, N., Mansell, P., Cooke, D., Hopkins, D., Speight, J. and Blake, H. (2019) PAID-11: a brief measure of diabetes distress validated in adults with type 1 diabetes. Diabetes Research and Clinical Practice, 149, pp. 27-38.
Williams, E., Cox, A. & Cooper, R. (2019) Ethnic Differences in Functional Limitations by Age Across the Adult Life Course. The Journals of Gerontology: Series A, Vol 75, Issue 5, 914–921, https://doi.org/10.1093/gerona/glz264.
Groom N, Kidd T, Carey N (2018) Urgent care centre redirection: evaluation of a nurse-led intervention, Emergency Nurse 25 (9)pp. 25-30 Royal College of Nursing DOI: 10.7748/en.2018.e1768.
Mold F, Raleigh M, Alharbi NS, de Lusignan S. The Impact of Patient Online Access to Computerized Medical Records and Services on Type 2 Diabetes: Systematic Review. Journal of Medical Internet Research. 2018;20(7):e235. doi:10.2196/jmir.7858.
Nicholson, C., Davies, J. M., George, R., Smith, B., Pace, V., Harris, L., ... & Murtagh, F. E. (2018). What are the main palliative care symptoms and concerns of older people with multimorbidity? A comparative cross-sectional study using routinely collected Phase of Illness, Australian Modified Karnofsky Performance Scale and Integrated Palliative Care Outcome Scale data. Ann Palliat Med, 7(Suppl 3), S164-75.
Stenner K, Edwards J, Mold F, Otter S, Courtenay M, Moore A, Carey N. Medicines management activity with physiotherapy and podiatry: A systematic mixed studies review. Health Policy. 2018 Dec;122(12):1333-1339. doi: 10.1016/j.healthpol.2018.10.004. PMID: 30337160.
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