Long-term Conditions and Ageing Research Cluster
Our vision is to ensure provision of high quality, values-based health and social care research across the life-span.
Effective management of people with long-term conditions is a priority within health care and an ageing population. Our research activities are designed to develop and strengthen local, national and international collaborations enabling the delivery of high quality, values-based health and social care practice across the lifespan.
Our research focuses upon dementia care, frailty and multi-morbidity in older people, non-medical prescribing, self-management of long-term conditions, workforce preparation and models of care.
The mission of the Long-term Conditions and Ageing Cluster is to ensure provision of values-based care for service users by advancing knowledge in health and social care across the lifespan.
Our research falls into five main areas:
- Dementia care
- Frailty and multi-morbidity in older people
- Non-medical prescribing
- Self-management of long-term conditions
- Workforce preparation and models of care
- Palliative and end of life care.
- Realist synthesis and evaluation
- Randomised controlled trials
- Intervention studies
- Participatory research
- Grounded theory
- Systematic review
- Delphi technique
- Mixed methods
- Longitudinal and cohort studies.
Areas of interest for doctoral study
We welcome approaches from people wishing to undertake postgraduate research with us. We particularly welcome enquiries in the following areas:
- Frailty and care homes- admissions avoidance, recognising deteriorating patients, quality of life, transitions into end of life, and end of life care
- Implementation and evaluation of non-medical prescribing, medicines optimisation
- Workforce development: extended roles, advanced clinical practice
- Self-management of long-term conditions
- Learning disabilities
- Quality improvement.
Some of our current studies include:
- Cross-cultural perspectives on roles, responsibilities and future care for older adults.
- Evaluation of the implementation of “Freedom to Speak up Local Guardians” in NHS acute hospital trusts and mental health trusts in England
- Evaluation of supplementary prescribing by dietitians and independent prescribing by therapeutic radiographers
- Developing an innovative healthcare system for palliative care in Ethiopia: co-design and user testing of a mobile phone based remote monitoring system (E-PC)
- Improving Early Detection of Infection in Nursing Home Residents - Implementing the Early Detection of Infection Scale (EDIS) in UK Nursing
- TiME Matters – study exploring design and acceptability of using a digital story-based communication system for care home settings
- DAFNEplus: Developing and trialling the DAFNEplus (Dose Adjustment for Normal Eating) intervention.
- BEAT Diabetes – An online, digital platforms, accessed through primary care, to encourage and support people with type 2 diabetes to make positive lifestyle changes
- Melting the Snowy White Peaks of the NHS: Overcoming barriers to career progression for BME nurses
- Generation Z’s Views of Care and Care Careers: An International Comparison
- Does the current pre-registration nursing curricula meet the needs of newly qualified nurses who are recruited directly to community nursing?
- Time for Dementia - involving health care professionals visiting people with dementia and their family
- MDTea podcasts - Developing open access series of podcasts for all healthcare professionals working with older adults
- CHHiP linkage - Extracting primary care records for patients enrolled to a RCT called CHHiP to investigate the effect of comorbidity on recovery from cancer and its treatment
- Story-telling and occupational wellbeing in health-care: a process evaluation of Schwartz Centre Rounds® using an interactional framework
- What do patients want from online access to their primary care record? A qualitative investigation into patients’ reported needs and expectations regarding online access
- Developing Wellbeing Online - online platform for digital mental health and wellbeing interventions for University of Surrey students and staff
- The PALLUP Study: Equipping community services to meet the palliative care needs of older people with frailty approaching the end of life; a mixed methods study- Funded by NIHR/HEE ICA SCL
- CASACDE Project: Empowering staff caring for older people with frailty - Funded by Burdett Trust for Nurses- Frailty Matters Programme
- INTERPRET-X- Understanding patient uptake and experience of interpreter services in primary care: a pilot study
- Delegation of insulin administration to non-registered healthcare workers in community nursing teams: an evaluation of care and practice for older people with diabetes (CINDI).
- Karen Cook: Developing undergraduate curricula to facilitate nurses’ ability to support self-management amongst people with long term conditions (Supervisors: Dr Debbie Cooke, Dr Nicola Carey)
- Judith Edwards – The role of medicines management and non-medical prescribing in implementation of the paramedic advanced practitioner role. (Supervisors: Dr Nicola Carey, Prof Melaine Coward. Co-supervisor: Mr Andy Collen)
- Olivia Luijnenburg: ETHoS Project: The Ethical Implications of 'Spirituality' in Residential Care for Older People. (Supervisors: Professor Ann Gallagher, Dr Freda Mold)
- Sarah Combes: The CLaD Study- facilitating advance care planning for older people living with frailty (Supervisors: Professor Caroline Nicholson, Professor C Norton (KCl) and Dr K Gillett (KCl))
Banks, C.A., D. Wainwright, R. Gooberman-Hill. (2020). An ethnography exploring the limits of dedifferentiation in the lives of adults with learning disabilities. Special Issue in Journal of Intellectual and Developmental Disability https://doi.org/10.3109/13668250.2020.1799161 (forthcoming December 2020).
Banks, C.A. (2019). Professional distance versus human touch. Community Living. Available at: https://www.cl-initiatives.co.uk/professional-distance-versus-human-touch/
Carey, N., Alkhamees, N., Cox, A., Sund-Levander, M., Tingström, P. & Mold, F. (in press) Exploring views and experiences of how infections are detected and managed in practice by nurses, care workers, and manager’s in nursing homes in England and Sweden: a survey protocol. BMJ Open.
Combes, S., Nicholson, C. J., Gillett, K., & Norton, C. (2019). Implementing advance care planning with community-dwelling frail elders requires a system-wide approach: An integrative review applying a behaviour change model. Palliative Medicine, 33(7), 743–756.
Davidge G, Sanders C, Hays R, Morris R, Atherton H, Mold F, McMillan B. What do patients want? A qualitative exploration of patients’ needs and expectations regarding online access to their primary care record. British Journal of General Practice 2020; 70 (suppl 1): bjgp20X711245. DOI: 10.3399/bjgp20X711245
Gallagher, A. & Cox, A. (2019) The ethics of ‘frailty’. Nursing Ethics 26 (2):325-326
Gong, E. et al. (2020) My Diabetes Coach, a mobile application-based interactive conversational agent to support type 2 diabetes self-management: A randomized effectiveness-implementation trial. Journal of Medical Internet Research (in press)
Groom N, Kidd T, Carey N (2018) Urgent care centre redirection: evaluation of a nurse-led intervention, Emergency Nurse 25 (9)pp. 25-30 Royal College of Nursing DOI: 10.7748/en.2018.e1768
Kidd, T., Mold, F., Jones, C. et al. What are the most effective interventions to improve physical performance in pre-frail and frail adults? A systematic review of randomised control trials. BMC Geriatr 19, 184 (2019). https://doi.org/10.1186/s12877-019-1196-x
Lemanska, A., Byford, R. C., Cruickshank, C., Dearnaley, D. P., Ferreira, F., Griffin, C., ... & Faithfull, S. (2020). Linkage of the CHHiP randomised controlled trial with primary care data: a study investigating ways of supplementing cancer trials and improving evidence-based practice. BMC Medical Research Methodology, 20(1), 1-12.
Lemanska, A., Poole, K., Griffin, B. A., Manders, R., Saxton, J. M., Turner, L., ... & Faithfull, S. (2019). Community pharmacy lifestyle intervention to increase physical activity and improve cardiovascular health of men with prostate cancer: a phase II feasibility study. BMJ open, 9(6), e025114.
Mold F, Hendy J, Lai YL, de Lusignan S. Electronic Consultation in Primary Care Between Providers and Patients: Systematic Review. JMIR Med Inform. 2019 Dec 3;7(4):e13042. doi: 10.2196/13042.
Mold F, Raleigh M, Alharbi NS, de Lusignan S. The Impact of Patient Online Access to Computerized Medical Records and Services on Type 2 Diabetes: Systematic Review. Journal of Medical Internet Research. 2018;20(7):e235. doi:10.2196/jmir.7858.
Nicholson, C., Davies, J. M., George, R., Smith, B., Pace, V., Harris, L., ... & Murtagh, F. E. (2018). What are the main palliative care symptoms and concerns of older people with multimorbidity? A comparative cross-sectional study using routinely collected Phase of Illness, Australian Modified Karnofsky Performance Scale and Integrated Palliative Care Outcome Scale data. Ann Palliat Med, 7(Suppl 3), S164-75.
Shore CB, Hubbard G, Gorely T, Polson R, Hunter A, Galloway SD. (2019). Insufficient reporting of factors associated with exercise referral scheme uptake, attendance, and adherence: a systematic review of reviews. Journal of Physical Activity and Health. 16:667–76. 10.1123/jpah.2018-0341
Stanulewicz, N., Mansell, P., Cooke, D., Hopkins, D., Speight, J. and Blake, H. (2019) PAID-11: a brief measure of diabetes distress validated in adults with type 1 diabetes. Diabetes Research and Clinical Practice, 149, pp. 27-38
Stenner K, Edwards J, Mold F, Otter S, Courtenay M, Moore A, Carey N. Medicines management activity with physiotherapy and podiatry: A systematic mixed studies review. Health Policy. 2018 Dec;122(12):1333-1339. doi: 10.1016/j.healthpol.2018.10.004. PMID: 30337160.
Williams, E., Cox, A. & Cooper, R. (2019) Ethnic Differences in Functional Limitations by Age Across the Adult Life Course. The Journals of Gerontology: Series A, Vol 75, Issue 5, 914–921, https://doi.org/10.1093/gerona/glz264
Williams ED, Park CM, Chaturvedi N, et al. Associations Between Left Ventricular Dysfunction and Brain Structure and Function: Findings From the SABRE (Southall and Brent Revisited) Study. J Am Heart Assoc 2017;6(4)