Dr Anne Arber
Biography
Biography
Anne Arber has a clinical and research background in supportive cancer care. Her research focuses on supportive care for patients with cancer and their carers; including symptom support using e-health and patient and public involvement in cancer and palliative care research. Anne also conducts research in Advanced Communication Skills.
Anne is a highly experienced PhD supervisor and was awarded the Vice-Chancellors Award for Post Graduate Research Supervisor of the Year 2018 in the Faculty of Health and Medical Sciences; in recognition of creating the most supportive, stimulating and inspirational research environment. She combines research and teaching as integral parts of her role within the university.
She has research expertise in grounded theory, ethnography and mixed methods research. She is a trainer in Advanced Communication Skills and has been invited to run workshops in advanced communication in the UK and in Europe.
She has examined many doctoral thesis as both an internal and external examiner across the UK and internationally.
Research
Research interests
- Supportive care of patients with advanced cancer
- Carers, and family members affected by cancer
- Communication and breaking bad news
- Patient and public involvement in research
Ongoing Research Projects
- Closing the engagement gap: creating Research Champions to promote patient and public involvement/engagement in mesothelioma research. The June Hancock Mesothelioma Research Fund 2019-2020
- End of life planning for young people with learning disabilities. Funded by Health Education England 2017-18
- Real time symptom assessment for patients with malignant pleural mesothelioma. Funded by British Lung Foundation September 2016-2018
Research Projects
- Peer support for carer of people with advanced cancer, University of Surrey Research Support Fund. April 2016
- A Delphi study on the research priorities of UK oncology nurses and patients. Co-researcher with Professor Emma Ream 2015. Funded by United Kingdom Oncology Nursing Society
- Think family project (November 2013 - August 2014) A project related to pre bereavement support for children who have a parent with cancer in collaboration with Frimley Park NHS Trust. Principal Investigator. Funded by Macmillan Cancer Support.
- A study on fostering empathy between students and older people - a practical approach (AFRESH). Co-researcher funded by Averil Osborne Fund March 2012-October 2012.
- Nurses' Decision-Making Practices at the End of Life in the Intensive Care Unit: A cross-cultural exploration. Co - researcher with Brazil, Germany and Ireland (2012-2013).
- Carers in the 21st Century. Economic and Social Research Council Seminar Series (October 2012-September 2013).
- Information giving and patients receiving oral chemotherapy for Multiple Myeloma (January 09-June 11 Awarded by Myeloma UK).
- A project to examine the patient's experience of their care pathway following a diagnosis of mesothelioma. Awarded by Surrey, West Sussex and Hampshire Cancer Network (April 2008-June 2009).
- A project to explore the needs of carers of patients with a malignant brain tumour (April 2006-August 2007).
My teaching
Module Leader
- Research design and methodology (Master's Level NURM141)
- Advanced Communication Skills (Master's/Degree Level NURM105/NUR3206)
- Challenges in Pain Management (Master's Level/Degree Level NURM108/NUR3310)
Current doctoral students
- Isaac Badu Appiah: Traditional herbalists and cancer in Ghana.
- Emma Wadey: An exploration of the mental health and well-being of those bereaved by suicide
- Penny Franklin: Connecting with parents and their dependent children
Doctoral Students who have completed
- Michelle King-Okoye: Silence among Afro-Caribbean men diagnosed with prostate cancer in Trinidad and Tobago: a grounded theory study
- Nicola Ayers: An ethnography of the palliative care and dying at home in Ethiopia.
- Nicola Beech: Restoring a sense of wellness following colorectal cancer: a grounded theory
- Elizabeth Dunn: The lived experience of returning home following allogeneic stem cell transplantation.
- Diane Laverty: Respite care for people with neuro-degenerative diseases
- Sebastian Probst: Malignant fungating wounds- experiences of living in and with an unbounded body
Departmental duties
- Chair of Faculty Research Ethics Committee
- Chair Service Users and Carers Group
- Member of the NCRI sub group for Quality of Life
- Member of the steering group Jigsaw South East, Pre Bereavement Project Group
- Member of the Race Equality Group
My publications
Publications
King-Okoye M., Arber A., Faithfull S (2019) Beliefs that contribute to delays in diagnosis of prostate cancer among Afro-Caribbean men in Trinidad and Tobago. Psycho-Oncology 28,6 1321-1327
Wang Q., Arber A., Shen A., Qiang W (2019) Perspectives of Chinese cancer patients towards disclosure of cancer diagnosis to their minor Children. Cancer Nursing (in Press)
Franklin P, Arber A, Reed L, Ream E (2018) Health and social care professionals’ experiences of supporting parents and their dependent children during, and following, the death of a parent: A qualitative review and thematic synthesis. Palliative Medicine (In press)
Arber A, Odelius A. (2018) Experiences of oncology and palliative care nurses when supporting parents who have cancer and dependent children. Cancer Nursing 41, pp248-254
Gallagher A, Arber A, Peacock M (2018) Helping Young People with Learning Disabilities and their Families to Plan End of life Care: The ADVANCE Toolkit for Care-Givers. Learning Disability Nursing (In press)
King-Okoye M, Arber A, Faithfull S (2017) Routes to diagnosis for men with prostate cancer: men’s beliefs about how changes to their bodies and symptoms influence help-seeking actions. European Journal of Oncology Nursing 30, pp. 48-58
Cox AC, Arber A, Gallagher A, MacKenzie M, Ream E. (2017) Establishing priorities for UK cancer nursing research: Nurse and patient collaboration in a UK Oncology Nursing Society Delphi survey. Oncology Nursing Society Oncology Nursing Forum 44, pp. 192-203
Ayers NE, Vydelingum V, Arber AM. (2017) An ethnography of managing emotions when talking about life-threatening illness. International Nursing Review 64, pp 486-493
Cox AC, Arber A, Bailey F, Dargan S, Gannon C, Lisk R, Quinn B, Samarasinghe J, Wrigley M, Gallagher A. (2017) Developing, implementing and evaluating an end of life care intervention. Nursing Older People, 29 (1), pp. 27-35
Dunn E, Arber A, Gallagher A. (2016) The Immediacy of Illness and Existential Crisis: Patients' lived experience of under-going allogeneic-stem cell transplantation for haematological malignancy. A phenomenological study. European Journal of Oncology Nursing, 21, pp. 90-96
Laverty D, Arber AM, Faithfull S. (2016) Respite for patients and carers in neurodegenerative disease: a grounded theory study. European Journal of Palliative Care, 23 (4), pp. 175-179
Gallagher A, Bousso RS, McCarthy J, Kohlen H, Arber A et al (2015) Negotiated reorienting: A grounded theory of nurses’ end-of-life decision-making in the intensive care unit. International Journal of Nursing Studies, 52, 4, pp. 794-803
Mishelmovich N, Arber A, Odelius A. (2015) Breaking significant news: the experience of clinical nurse specialists in cancer and palliative care. European Journal of Oncology Nursing, 21, pp. 153-159
Gregg N., Arber A., Ashkan K., Brazil L., Costello A et al (2014) Behavioural and personality changes following brain tumour: patients and relatives perspectives. Supportive Care Cancer (In press)
Gamlen E., Arber A. (2013) First assessments by specialist cancer nurses in the community: an ethnography. European Journal of Oncology Nursing 17,6, 797-801
Laverty D, Faithfull S. Arber A (2013) Respite care at an inner London hospice. European Journal of Palliative Care. 20,2 72-76
Arber A, Hutson N, de Vries K, Guerrero D, (2013) Finding the right kind of support: A study of carers of those with a primary malignant brain tumour. European Journal of Oncology Nursing 17,1 52-58
Probst S, Arber A, Faithfull S. (2013) Malignant fungating wounds- the meaning of living in an unbounded body. European Journal of Oncology Nursing 17,1 38-35
Arber A., Spencer L (2013) 'It's all bad news': the first 3 months following a diagnosis of malignant pleural mesothelioma. Psycho Oncology Published online DOI 10.1002/pon.3162
Probst S, Arber A, Trojan A, Faithfull S. (2012) Caring for a loved one with a malignant fungating wound. Supportive Care Cancer 20,12 3065-3070
Beech N, Arber A, Faithfull S. (2012) Restoring a sense of wellness following colorectal cancer: a grounded theory. Journal of Advanced Nursing, 68,5: 1134-1144
Arber A, Hutson N, Guerrero D, Wilson S, Lucas C (2010) Carers, of patients with a primary malignant brain tumour. Are their information needs being met? British Journal of Neuroscience Nursing 6,7:329-334
Arber A, Faithfull S, Plastoka M, Lucas C, de Vries K (2010) A study of patients with a primary malignant brain tumour and their carers: Experience of symptoms and access to services. International Journal of Palliative Nursing 16,1 24-30.
Gallagher A, Arber A, Quirk A and Chaplin R (2009) Service users' experience of receiving bad news about their mental health, Journal of Mental Health (In press)
Probst S, Arber A and Faithfull S (2009) Malignant fungating wounds: a survey of nurses' clinical practice in Switzerland, European Journal of Oncology Nursing 13, 295-298
Arber A, Gallagher A (2009) Generosity and the moral imagination in the practice of teamwork, Nursing Ethics, 16 (6)
Arber A (2008) Team meetings in specialist palliative care, Qualitative Health Research, 18, 1323-1335
Hughes N and Arber A (2008) The lived experience of patients with pleural mesothelioma., International Journal of Palliative Nursing, 14,2, 66-71
Arber A (2007) "Pain talk" in hospice and palliative care team meetings, International Journal of Nursing Studies, 44, 916-926
Arber A (2006) Reflexivity. A challenge for the researcher as practitioner. Journal of Research in Nursing, 11(2)147-157
Li S and Arber A (2006) The construction of "troubled" and "credible" patients: a study of "emotion talk" in palliative care settings, Qualitative Health Research, 16(1)27-46
Arber A (2004) Is Pain What the Patient Says It Is? Interpreting an account of pain, International Journal of Palliative Nursing, 10, 491-496
BOOKS
Allan H and Arber A eds (2018) Reflexivity in Health and Social Care Field Research. Palgrave Macmillan
Arber A (2016) Team communication in the hospice setting. In Wittenberg E., Ferrell BR., Goldsmith J., Smith T., Ragan SL., Glajchen M., Handzo G. Textbook of palliative care communication. Oxford University Press, pp. 340-345
Arber A & Wade C. (2012) Truth Telling. In Gallagher A, Hodge S. Ethics, Law and Professional Issues for Health Practitioners: a case based approach. Palgrave
RECENT CONFERENCES
Maguire R, Arber A, Klepacz N, Connaghan J (2019) Poster presentation 17th Annual British Thoracic Oncology Group (BTOG) Conference 23rd-25th January Dublin, Ireland
Arber A, Klepacz N et al (2018) Oral and poster presentation: Symptom assessment by mobile phone for patients with pleural mesothelioma. The National Lung Cancer Forum for Nurses. Telford Conference Centre. Awarded prize for winning abstract
Arber A, Klepacz N, Maguire R, Connaghan J (2018) Staying connected: symptom assessment by mobile phone. British Sociological Association Medical Sociology Group 12-14th September 2018 Glasgow Caledonian University, Scotland
King-Okoye M, Arber A, Faithfull S (2018) Men and partners’ experiences of prostate cancer along routes to diagnosis in Trinidad and Tobago. British Sociological Association Medical Sociology Group 12-14th September 2018 Glasgow Caledonian University, Scotland
Heavy E, Lempp H, Allen H, Williams R, Arber A et al (2018) Metaphor use by patients with long term conditions: a secondary qualitative data analysis. British Sociological Association Medical Sociology Group 12-14th September 2018 Glasgow Caledonian University, Scotland
Arber A (2016) Findings from UKONS Delphi Study. UKONS Research MIG Inaugural Meeting. Guy’s Hospital, London 30th June 2016
Arber A (2015) Paper presented: ‘Think family’ project. International Conference on Cancer Nursing Vancouver, Canada July 2015
Arber A, Odelius A (2013) The “new normal” delivering information about oral chemotherapy in the clinic. Royal College of Nursing Research Conference, Hastings Europa Hotel, Belfast 20-22nd March